
metastatic triple negative breast cancer - with HER2 Low
We have a diagnosis. After a failed biopsy, many scans, many appointments - we’re finally at a diagnosis of subtype and a treatment plan.
The biopsy showed HER2 Low, and negative for Hormone Receptor status. Technically, this would be considered Metastatic Triple Negative Breast Cancer with HER2 Low.
bone biopsy
In order to determine what subtype the spread of my breast cancer is to my bones, I have to undergo a bone biopsy. I’ll be honest - I’m terrified. You’re awake during the procedure. And no one enjoys pain, obviously.

background - please, share
I need the best brains on this and I need them as quickly as possible. I have a tremendous support system and connections - but if you know someone who has a success story or a doctor you know will be tenacious - share this background please.

metastatic breast cancer
The update no one wants to hear. My cancer is back. We are shattered and broken but rebelliously hopeful.
It’s in my bones. I’ll have a PET scan later this month to learn if it’s in other organs.
I have a bone biopsy scheduled to learn what kind of breast cancer cells set up shop in my bones.

the kitchen sink
“We’re throwing everything but the kitchen sink at this,” my oncologist recently said. Kicking off the first week of the year with an infusion of Herceptin and Perjeta, and throwing in my follow up with my oncologist, was a lot. Thankfully my mom was with me.
xeloda (capcetibine) recap
I took chemo in the weirdest places over the last six months. On the beach in Charleston, Myrtle Beach, Maine, and Costa Rica. In bars. In the mountains of Amherst and Acadia National Park. At dinners. At client events and meetings. At a Chris Rock comedy show. I chased chemo with water, Gatorade, and my personal favorite - a mimosa or red wine (don’t worry, my doctor said a drink here or there is fine). I’d often wonder how many people in the bar or restaurant were also dealing with the crap of cancer. Or had cancer and didn’t know. But, it’s done! I’ve made it through!!

cardiotoxicity and cardiomyopathy
At the very beginning of my treatments last year I had an echocardiogram to have a baseline of my heart function. Some chemo and targeted therapies can cause weakening of the heart, also known as cardiotoxicity, so we needed to ensure I was starting off strong. Which, I was! My heart was in perfect working condition.

survivorship
Woo! We’re in it. Surviving. Apologies for no update - there really haven’t been any treatment updates. Just trucking along. Still on the Xeloda, chemo pills and the Herceptin+Perjeta infusions every three weeks.

column: breast cancer is not pink
It’s October, and as the leaves are changing to yellow and orange it seems suddenly everything else is turning pink. Under the guise of awareness, companies creatively color their products, logos and even cars pink.

xeloda, herceptin + perjeta, and surgery updates
Time flies when you’re… having fun and simultaneously battling every side effect in the book. I am still doing Herceptin and Perjeta infusions every three weeks, Lupron shots monthly, and cycles of Xeloda (chemo pills). All of that in combination with the follow up appointments post radiation, surgery, physical therapy, and oncology - it’s still a full time job on top of my full time job that pays my bills and provides the much needed health insurance.

quick update
Oh, hi! Sorry, I’ve been out here living and ignoring this blog! And if you haven’t followed along on Insta or FB, well then you might be a little lost.
My second infusion of Herceptin and Perjeta went well! No nausea follow the infusion and overall few side effects - woo!

herceptin + perjeta 1
I am back! Do I want to? No. Do I get to? Yes! This is my insurance policy to stay NED (no evidence of disease) and honestly, I’m really lucky I get this. I think a lot about what would be different if we knew my tumor cloned to HER2+ earlier. But, I’m dropping that, I can only move forward. And forward means really great targeted drugs.

no evidence
WE DID IT!!!! For once, I got really damn lucky!!!! I have been flying high since the news yesterday. But, let me back up a little to better explain how we got here because I know this was a surprise to some.

thank you, next.
I’m excited! Which is weird to say when your cancer morphed and you didn’t have a good response to chemo and now my treatment is another entire year. But, yes, I’m excited!
Although I’ll be in active treatment for another year – this treatment should be kind. Most importantly, I can live my life. And isn’t that what treatment is all about – so you can continue living?

disappointment & surgical plan
am trying hard but I feel so defeated. I had a breast MRI on 2/28 and I knew the fate of my breasts hinged on the outcome of this scan. I was nervous but hopeful. I truly felt the cancer would be barely there or completely gone. I spiraled for less than 24 hours just wondering what was going to happen.
I could hear it in my surgeon’s voice that he didn’t have the news we wanted. “You had a partial response to the chemotherapy, not as much as we hoped and thought,” he said. He offered a lumpectomy but explained it’s a high likelihood we’d end up back in the OR for a mastectomy. There’s just still too much cancer left.

chemo 16 - red devil 4 - finito!
Almost six months ago I embarked on the most terrifying path I’ve ever encountered. I’m not exactly sure how I feel now that chemo is over. And if you told me six months ago that this is where I’d be, I wouldn’t believe you. Shouldn’t I be thrilled that chemo is over?
Yes. Yes, I am thrilled. But, there’s an air of hesitancy to celebrate hanging over me.


chemo 15 - red devil 3
This round brought less nerves and anticipatory nausea. It’s the only treatment I’ve done without taking Xanax. Not that I didn’t necessarily need it - I just forgot to take it. I guess, 15 rounds in, I’m getting used to this chemo thing.